I have posted some here about what I have been dealing with lately physically but thought I would write the whole thing out so that anyone who is interested can see the whole thing in one post. There have been some new developments and anyone who reads this, I covet your prayers.
This is actually a copy of part of an email that I sent my aunt a few days ago."A few day after I had Sarah I started running a low fever and had a lump on my leg/groin area. I also had some back pain. My midwife came back and looked at my groin and thought it really looked like swollen lymph nodes. She sent me in to have it looked at. The NP I went to looked at my groin and said that it was a strained ligament in my leg, probably from carrying the baby. Nothing to worry about. The back pain was from having the baby and the fever was probably a urinary tract infection. She gave me some antibiotics and that was that. Well, I did get to feeling better some, but the lump was still there. And the fever left for a while maybe. Then I started getting tired again and fever came back, just a really low fever. Like, 98.9-100.2. Once it was 101. Very low. So I called the NP back and told her the deal. She thought I had a uterine infection then and over the phone told me she would just call in some antibiotics and see if that cleared it up. She did, I took them and while I was on the antibiotic, the lump on my groin/leg, turned red. Now, when I had had that come up to start with, my midwife kept asking me, "Is it red," "Is it red at all," "Can you see any redness", and then looked herself. There was no red. When it did turn red, however, I knew it was a danger sign, partly because of my midwife being so concerned about that. (Btw, my midwife is an RN too.) I called the NP. She was not able to look at me, she was going to be out of pocket, but said that I was probably going to need a DNC cause I had a uterine infection and probably needed to go to someone else. Which we did as soon as we could get in. I went to a different NP who worked with a doctor. She gave me a pelvic exam, (which the other lady never did), took cultures and all to send off, but said that she didn't think I had any problem. When she saw the lump on my groin her eyes got a bit wide. She said she was sure that it was swollen lymph nodes and wanted to get busy treating that immediately. She got the doctor to look at it just to be sure. He was sure, more than sure. I asked him what could have caused them to swell up. He told me what didn't cause it, and that was the birth of or carrying the baby. He said none of the female stuff is dealt with through those nodes.
So, Glenda, the other NP missed it. Bad. Cause this really is something to be taking care of. She told me many times, cause I kept asking, that it was not a big deal. Looking back, she just didn't take enough time with me. She didn't even give me a pelvic exam, and I had just had a baby when I saw her. I saw the contrast loud and clear when I went to see Marilyn, the one in Abilene. Her nurse talked to me for several minutes about my medical history, symptoms, etc and then Marilyn talked to me herself for about 15 min before ever even looking at me. That let me know right off that this was a whole different deal. And I was glad. And Glenda just assumed that she could take care of what was going on. I thought that she would refer me to a doctor if the need was there. Marilyn on the other hand has been checking very carefully it seems with the doctor she works with. She has asked him about everything she does.
I wasn't glad that they put me on some pretty nasty antibiotics that I couldn't nurse Sarah while taking. But it needed to be taken care of. Marilyn was very serious about it. I went back in a week and the redness was gone, but the swelling wasn't down much. She didn't like it and gave me more antibiotics and also said that she would like me to get a CT scan. She told me to let her know if I had any more fever or anything like that. The day after I saw her I had fever. I called her and told her and she wanted me to get in quickly and get the CT scan done. That was Thursday. I called Friday to try to schedule one and got in that day because someone cancelled. So we scrambled to Abilene and got that done. (Which was no fun, by the way. I don't recommend the drink they give you before you have it done. Mine tasted like old, ten year old Country Time lemonade that was really, really bad. Nasty doesn't even come close.)
They called us Wed. and had us come in and tell us the results of the scan. They said that they were suspecting lymphoma of some kind. Possibly Mono, but really not thinking that was a high chance. So, they wanted me to get a full CT scan yesterday and more specific blood tests. So we did that yesterday and I see a surgeon Tuesday. We don't know the results of the new scan yet but will early Tuesday. They did tell us that we will probably need to do a biopsy of the swollen nodes. There is now also one on my neck swollen a bit.
And that is where we are now. Either way, I know I am okay. God is taking care of me and I am going to be fine no matter what.
Oh, and btw I remember that lump being there while I was pregnant. It was sore but I thought that it was just from the baby. I did think it was swollen once but then thought it was my imagination. And it was not much swollen, just a bit, so minute that it was hard to tell. I never mentioned it to my midwife since I didn't think it was anything. :-( So this has probably been there for about 6 months."
I go in tormorrow for an appointment with a surgeon about a biopsy and to find out the results of the other scan. I will update you all then.
I have been learning so much during this time and have so much to share, it is really exciting. God has done a lot in my life during this time and I feel like I have grown 10 feet spiritually. It is so awesome.